Editor's Note: For more on patient advocacy groups, like the Porphyria Research Consortium, check out our AM Last Page, entitled "Realizing the Potential of Patient Organizations in Translational Research—Delivering Treatments for Rare Diseases." By: Desiree Lyon Howe, executive director, American Porphyria Foundation The American Porphyria Foundation (APF) has been instrumental in facilitating porphyria research for over thirty …
